UPTURN Feasibility Study

For 'Prepare for PR' patients only

You have received a letter from your NHS provider as you have been offered Pulmonary Rehabilitation (PR). As part of the UPTURN Feasibility Study, you have been offered the 'Prepare for PR' support service.

In this page, you will have access to more information to help you decide if you want to opt-out from the research study. To get started, please select one of the options below or scroll down the page.

Translated Letter

The letter you received have been translated to various languages.

Click Here

About the Study

Understand what is the study about and what is 'Prepare for PR'.

Learn More

What you need to do

Understand what will happen to you if you do not opt-out.

Click Here

Guide to Opt-out

When you can request to opt-out and different options to opt-out from the study.

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Privacy Notice

Understand how your data is being used before you make a decision.

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About the Study

Study Duration

May 2026 - August 2026

3 months

Study Outcomes

Acceptability of the Prepare for PR service to patients, and health professionals.

Ability of patients to access, adopt, and where applicable, implement components of the Prepare for PR service.

Total Sites

2 PR Services

Study Team

The study is run by Norwich Clinical Trials Unit, Asthma + Lung UK, King's College London, University College London, and University of York.

View the full team by clicking here

Intervention

The intervention is a support service known as 'Prepare for PR'.

Future Plan

Using the results of this study, the research committee and funder will decide if we should continue to a bigger study with more participants and sites.

What happens in the study?

01 Some patients referred at site listed below will be selected to participate in the UPTURN Feasibility Study (WP1b).

02 Selected patients will be sent a letter (total of 40 patients) explaining the study and how to opt-out if they don't want to participate.

03 Contact details of those who didn't say they don't want to participate to be shared with Asthma + Lung UK so that they can send them the Prepare for PR document pack and contact them for a free optional support phone call.

04 In their own time those selected patients can read the information provided and access the online resources available as part of the service.

05 Patients can access an optional support phone call with the Asthma + Lung UK Health Advisor Team. The call can last up to 20 minutes but can be stopped at any point.

What is Prepare for PR?

Prepare for PR is a support service designed by people with COPD, their carers, and healthcare professionals. It is not a medical treatment.

Prepare for PR is here to support patients with COPD through their journey before their first Pulmonary Rehabilitation appointment. Prepare for PR consists of the following as part of the support service.

Prepare for PR
Booklet

Patients will receive the booklet through post and email.

This booklet explains:

Prepare for PR Checklist
What is COPD and how PR can help
What happens at PR
Common Questions of PR

Prepare for PR
Website

Patients will get access to the website that contains more infromation.

The website contains all translated version of the components.

Languages available:

English
British Sign Language (BSL)
Bengali
Urdu
Punjabi

Videos

(Website)

Patients can watch and listen to people with lived-experience and healthcare profressionals.

Videos are made with:

COPD patients
Carers of COPD patients
Healthcare Professionals

Phone Calls

Patients can talk to a healthcare advisor.

Participants can share their worries and talk to a trained healthcare advisor from Asthma + Lung UK.

A translator can be requested for the phone call.

All phone calls are optional and are recorded for research and training purposes.

What do we ask of you?

Read the letter from your NHS provider titled
'Support service and research study' and or the information below.

If you do not want to take part, please contact your NHS provider by the date stated in the letter.

If you do not contact your NHS provider to opt-out by the date stated in the letter, your details will be shared with Asthma + Lung UK to provide you with the support service 'Prepare for PR'.

1 to 2 weeks after the opt-out date passes, you will get the 'Prepare for PR' booklet and links to other resources.

You will receive the items by post and email (if possible).

Translations are available.

Before your first PR appointment, you can have a free support phone call with a health advisor from Asthma + Lung UK to talk about your appointment.

Calls will be recorded; you don't have to take this call if you don't want to.

Guide to Opt-out

This section explain at which point of the study you can opt-out, and who you should contact to inform that you do not want to take part.

When to Opt-out?

There are two points to opt-out from the study.

01

By the date stated on the letter

If you do not want your information to be shared with Asthma + Lung UK to receive the Prepare for PR booklet and letter, contact your NHS provider by the date stated in the letter you received.

These are the details that will be shared with Asthma + Lung UK:

Your name
Your address
Your mobile number and/ or landline number
Your email address

02

By your first PR appointment

You can still opt-out after you missed the opt-out date on the letter. Your details will have been shared with Asthma + Lung UK, but you can still call your NHS provider to inform that you do not want to take part.

You might still receive some components of the Prepare for PR, but the team will be notified to not contact you from the point when you opt-out.

Opt-out Contacts

If you want to opt out, please contact your NHS site. If you’re not sure which one it is, check the letter called 'Support service and research study'. Please refer to your NHS site from the tab below to see their contact details.

If you prefer to contact the research team, please refer to the 'Research Team' tab.

Barts Health NHS Trust

PI Name: Marc Rodriguera

0208 223 8509

bhnt.arcare@nhs.net

9:30am to 4:30pm

Birmingham_Community_Healthcare_NHS_FT.svg.png

Birmingham Community Healthcare NHS Foundation Trust

PI Name: Della Thomas

Claire Williams (Research Nurse)

07895 332 442

claire.williams44@nhs.net